The purpose of this website is to bring awareness to the rare disease "Niemann-Pick Disease" and to celebrate Bryanna Scribner DeSouza's Life. Bryanna was born with a rare genetic disease "Niemann-Pick Disease", type C which is a progressive metabolic, neurological disease which is ultimately fatal. In medical research, it is found to have associated links to heart disease, Alzheimers, seizure and stroke disorders. Please consider a tax-deductible donation to: The National Niemann-Pick Disease Foundation (NNPDF) P.O. Box 310 Fort Atkinson, WI 53538 Please refer to their website for more details: www.nnpdf.org